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Lupus NewsLog


"Med students are often told, 'Know lupus and you know medicine'. This is because SLE can affect every part of the body. The basic path of lupus, or the factors that cause the disease, get to the core of how the human immune system functions." Dr. Daniel J. Wallace, author, The Lupus Book.

Lupus NewsLog's Mission
As chronic disease rates rise, astute researchers and doctors view lupus as an autoimmune disease model. To them, we lupies are the canaries in the coalmines. At Lupus NewsLog, we're studying their research and educating ourselves. Our medications, our dietary choices, our supplements, daily stresses and challenges, our relationships with friends, family and the quality of our medical care can all influence our health, for good or ill. The better we know what works for or against us, the better we can protect ourselves. Together, we're learning how to out-fox the wolf.
Lupus NewsLog's Own Links
Lupus NewsLog
Our Home Base
Lupus NewsLog's Articles With Attitude
Study & Sass On LNL's Reading List
Lupus NewsLog Thrivers
Our Own Stories
Lupus NewsLog Wolf Bytes
Cookin' With Chris
Recipes/Food Tips
Lupus NewsLog
Links Library

Our Large LNL
Links Database
Lupus NewsLog's Articles
Our Right to Pain Relief
Don't Suffer In Silence
Pain Care Bill of Rights
Protect Yourself
Lupus and a Wolf-Wise Diet
Nutrition News
Breathe Easy for Better Health
Real Life Relaxation Tips
Boogie Your Woogie to the Beat of Life
Dig Life In Your Own Groove
The Fat Fights - Part 1 - The Straight Skinny
Lupus and
Big Fat Lies
The Fat Fights - Part 2 -The Wolf Weighs In
Feed Your Inner Wolf Well
Obesity & The
American Healthcare Shell Game

The Fat Follies

Email Shar Phoenix
Your Lupie Scribe
LNL Thrivers ~
Our Own Stories
Patricia
"Learn To Live Again" (Invata Sa Traiesti Din Nou)
Sharon
Finding Solace
in Sharing
Julie
Julie's Journey
Kris
Running With
The Wolf
Sherry
A Survivor
Gives Her All
Chris
Taking a Bite
Out of the Wolf
John
Rewriting the Story of The
Big Bad Wolf
Sheila
She is Still Here
Shar
Living Beyond Acceptance
Lupus NewsLog's Sister Sites
Lupus Romania
Patricia and Stefan's Superb, Resourceful Site
The Lupie Bin
and Lupie Bin's Forum
Julie's Friendly Home Site and Private Haven
Lupus Ohio
John's Home at
The Lupus Sundial
LWLupus Sherry's Friendship Garden
Shar Phoenix
At AuthorsDen

New Articles, More Topics, Short Stories And More
Strange Dame
Rose Harris and Shar Phoenix rideshare life’s journey minus Thelma’s and Louise’s Grand Canyon glide.
Lupus Links
Alliance for Lupus Research
Seeking A Cure
Arthritis Foundation
Supporting Over 100 Related Conditions
Do I Have Lupus?
NIAMS
¿Tengo Lupus?
NIAMS
Dr Andrew Weil
Lupus Archive
Faces of Lupus
Everyday People
FMS-CFS-MS-LUPUS & ARTHRITIS SUPPORT
FMS and related diseases.
Get Into The Loop with The Lupus Research Institute (LRI)
HealingWell
Lupus Library
Living With Lupus
Dedicated Support
Lupus Chronicle
Hope, Support
And Humor
Lupus Foundation of America (LFA)
Changing Our Lupie World
Donate to LFA
Educate And Help Find A Cure
Become a Lupus Advocate
Help Shape the Future
The Lupus Lady's Autoimmune Disease Support
"a place for solutions!"
Lupus Meetup
Meet other local lupies on the 3rd Tuesday monthly
Lupus Multiplex Registry and Repository
Help Track The Wolf
Lupus Site
Our Butterfly's First Home Site
Lupus Support and Survival
An Excellent Resource
L U P U S website
St. Thomas Trust Archive
Sister Syndromes
AllThyroid.org
Thyroid Disorders And Treatments American Autoimmune Related Diseases Association
(AARDA)
Arthritis Foundation
Take Control
American Fibromyalgia Syndrome Association
(AFSA)
Arthritis Insight
"Knowledge is power...support is essential"
British Sjogren's Syndrome Association
(BSSA)
Celiac Disease Foundation
(CD/DH)
Crohn's/C olitis
Foundation

(CDFA)
Defeat Diabetes Foundation
Early Detection
Self-Management
Diabetes Mine
One of the best and most info-rich "Big-D" sites
Fibromyalgia (and CFS) Basics
(FMS/CFS)
Hughes Syndrome Foundation (APS)
(HS/APS)
International Diabetes Federation
(IDF)
IBS Tales Irritable Bowel Syndrome: Shared IBS Stories
Lupus Nephritis
Kidney Disease
National Fibromyalgia Association
(AKA National Fibromyalgia Awareness Campaign)
MSMusings
MS-Network
National Graves' Disease Fnd.
(Thyroid Disease)
PTC-info
Pseudotumor cerebriarticles, abstracts & info.
Sjogren's Syndrome Foundation
(SSF)
Raynaud's Association
"Support, Advice and Resources"
Nutrition Links
Big Fat Blog
Truth, Lies
And Obesity
Celiac.com
Gluten-Free Nutrition
Center for Food Safety
Watch What
You Eat
Food News.org
Pesticides In Produce Guide
Food Pyramids Nutrition Source
Harvard School of Public Health
Oldways
Smart, Happy, Healthy Eating
Organic Consumers
Food Safety
NATS
Nutrition Analysis Tools and System
Purple Medical Blog
Health/Food News
Good Food Logs
Cheap Cooking
Frugal Food Tips
Food Network
Meals In Minutes
Fresh Vegetables
Lean and Green
Reci-Please!
Food, Beverage
Scrapbook
Tang Monkey
FoodBloggers WebRing
Tasting Menu
Multi-Course Meals
Urban Organic
Shop Online
Support Coalition Troops/Familes
Fisher House
"comfort homes" - food/staples and healing care for injured soldiers and their families
Supporting US and Coalition Troops
Send Cards, Share Care Packages And Give More Help
SOS - UK
Support Coalition Soldiers - Help Protect Iraqi and Afghani Children
Click to Donate
Your Free Clicks Will Help Others

Animal Rescue Site
Feed Pets & Help Animals Survive
Breast Cancer Site
Help Provide Mammograms
Chid Health Site
Medical Care For Children
Clear Landmines
Clear dangerous inhabited land and help save lives.
Help End Hunger
With Dannon & Second Harvest
EcologyFund
Protect wildlife and wilderness
HungerSite
Feed Kids In Need
Literacy Site
Give Free Books To Children
Rainforest Site
Help Save Our Rainforests
Archives

Misused Medical Info Can Hurt
Please don't copy, edit or rewrite the information on this site to use without consent. LNL has received reprint consent from other sites. Facts used out of context, removed from their interacting links and material or copied inaccurately already have had negative impact on readers’ health. Please, for safety’s sake, save and share the links but leave this data where you find it or request consent and respect these simple guidelines.
Health Weblogs
A Chance to Cut is a Chance to Cure
a general surgeon
Adventures In Anesthesia
An interesting blog
Code Blog
Tales Of A Nurse
Nurses, Share
Your Stories
DB's Medical Rants
Health From Every Angle
Doc Notes
Family Medicine
Doc Shazam
A young resident's perspectives
Do No Harm
Stem Cells
Health Beat
Research Round-up
Health Care Blog
Insurance And Drug News
Interns' Diary
Two Healers With Heart
The Lingual Nerve
"The "Troupe Fantastique" - eight distinct voices from the medical field."
Medical Weblogs
News Feeds Directory
Medpundit
Hot Medical Commentary
Purple Medical Blog
News and Ideas
Q Fever!
Medical humor and medicinal parody
Random Acts Of Reality An E.M.T for the London Ambulance Service
RangelMD.com
Internal Medicine Library plus Q & A and Support Links
Science Blog
Clinical Topics
Trust Me, I'm a Doctor
An urban family doctor
AI & Lupus Logs
Bright Side of Life
Jillian's Weblog
Coping With Lupus
lupus and lupus-related illnesses
Death To Prednisone
Livejournal community
HGH Experiment Trying Human Growth Hormone to Combat FMS
IBS Tales Weblog Read personal stories and share your experiences.
Life Beyond Lupus
A Thoughtful, Articulate Lupie
Living with Diabetes
"How I attempt to live with diabetes"
The Lupus Lady
"shares her thoughts"
Thumper Thinks Out Loud: FMS One feisty writer, married to an anesthesiologist.
Wendy Usually Wanders
A Vermont
homesteader,
living lupie life
underground
your winter=my austral summer
An intelligent, interesting read
Health News
AMEDEO
Free weekly newsletters / new medical articles
American Medical News
The Physicians' Newspaper
BBC Health
Public Health
News Source
B.M.J.
The British Medical Journal. News and customized email alerts in lupus research and more.
The Free Medical Journals Site
Free access to medical journals.
Golden Links 4 Doctors
The Best Medical Websites, voted by the Amedeo Community.
Health On the Net
(HON) News HealthDay Archive
JAMA Highlights
Current News And Article Archives
NYT Health
Registration Required
Reuters Health News
Breaking News
UPI (Medical)Investigations
Holistic Health
Alternative Medicine Homepage
Health Sciences Library System
American Association of Integrative Medicine (AAIM))
Integrative and Western Medicine
American Holistic Health Association
(AHHA)Partnering to Create Wellness
(NCCAM)
National Center for Complementary and Alternative Medicine
Center for Integrative Medicine (CFIM))
Univ. of Maryland School of Medicine
(CAM) Sites
Complementary and Alternative Medicine
Doctor Yourself
Dr. Andrew Saul
HealthWeb
Integrative Medical Arts Group, Inc.
Holistic Online
Information Clearinghouse
Integrative Medicine Alliance
Bringing together healing traditions
Omega Institute for Holistic Studies
workshops and
retreats since '77
Whole HealthMD
Alternative, Complementary and Integrative Medicine
Mental Health
Borderline Personality Disorder Resource Center
(BPD)
How To Choose
A Competent
Counselor

Psychology Today
Self Tests And
Find a Therapist
Samaritans
24 hours/7 days confidential emotional support
Health Watch
100 Top Hospitals
Protect Yourself
BeMedWise
Use OTCs Wisely
COPD Center
Test Your Lung Function
The U.S. FDA
Recalls, Withdraws and Safety Alerts
Diabetes Monitor
Huge Resource
Drug Digest
Drugs, Herbs, Supplements Information Site
HealthGrades
Health Care Quality Reports
Healthy Skepticism
Countering misleading drug promotion
InformedHealth Online
Research Facts "Informative, Objective and Evidence-Based"
Internet Medical Journal
Medical Info
Medicine Bridge
Free And Discounted Prescriptions
MedLinePlus
Health News, Drug Info
No Free Lunch
Drug Hustles And Hi-Jinks
Pharma Watch
Punctures drug promotion
Public Citizen
Examine Your Doctor
Randall Chronic Pain Scale
Helps Doctors Understand
Rx Assist
Free And/Or Cheaper Meds
SafeMedication
Look Up Your Medications
WorstPills.org
Read Before Swallowing
Consumer WatchDogs
BodyBurden
Pollution In People
Children's Health Environmental Coalition
For Kid's Sake
Congress Watch
Make Your
Vote Count
Consumer Lab
Tests Health Products
Health Care Without Harm
Protecting
Patients
Trust for America's Health
Protecting The Public

Good Works
EarthDay Network
Help Preserve
The Planet
Green Ribbon Pledge
Conserve Energy
Habitat for Humanity International
Help Build Homes
IraqiSchools.com
Help Protect Iraqi Children's Future
Malaria No More
Malaria kills over 1,000,000 children every year. $10. bednets save lives
Medic Alert
Wear or Give Emergency Medical History Emblems
Mercy Corps
Help kids and others in need
Natural Resources Defense Council
Donate And Help Save The Planet
Network for Good
your town needs you right now
Operation Give
Supply Toys and Special Needs for Iraqi Children
Spirit of America
Help Americans serving in Iraq and Afghanistan aid people in need.
Lupus NewsLog's Code Warriors
LNL thanks Sheila Wilder for original weblog template design. Visit TV Is My Drug of Choice.
to read about this smart, salty, wry and witty blogger. Sheila's a keeper.

LNL thanks Jared Taber for expert weblog template modifications and site expansion. Custom computer systems and network solutions since 1997. Producing anime music videos for Outlawed Sleep Productions. Semi-finalist, comedy category, Anime Expo 2003. Email Jared Taber.
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Where authors and readers come together!
 
Introducing CarePlace
I’ve found a terrific website or, rather, it found me. Jenny, from CarePlace, sent me an invitation to check it out and share my impressions, opinions and ideas. She, Ben and the rest of the CarePlace team want to create a privacy protective, member only comfort zone for those dealing with their own challenges and those who care for them and want to help. I qualify on both issues, having lived my life on both sides. Lupus NewsLog has a similar intent and approach because the more we learn and the more we share, the more positive possibilities we will discover and everybody can benefit.

As the Internet grows older and wiser, our communities are adapting and expanding to meet our deeper needs. CarePlace is a resourceful site with a multi-dimensional mode, almost like an information mall made for morale-boosting and strongly encouraging individual involvement. We all have both needs and gifts and CarePlace is a gathering ground where both can be enriched.

Many years ago Margaret Mead wrote, “Never doubt that a small group of committed individuals can change the world; indeed, it is the only thing that ever has”. Those of us who are true believers always reach out together to create change.

Ben, Jenny and CarePlace have made such a powerful impression on me that I’ve joined, taking part in discussions and starting an onsite journal. As I wrote recently in Who is this Strange Dame?
I’m used to writing about lupus, not about me but I do believe it’s time for this ol’ wolf wrangler to learn some new tricks.

Luciano de Creszeno wrote, “We are, each of us, one-winged angels and we can only fly by embracing one another”. This has been my email signature quote and my personal motto for a very long time - it is the belief that gave wings to our Butterfly newsletter and still breathes life into these Lupus NewsLog pages.

A principal of Buddhism is, “Life is suffering”, but for a purpose. If we live, suffer and strive to grow beyond our pain, we gain so much that can elevate our own lives and help to uplift others. Come check out CarePlace
with me - you’re likely to find something there, to give and receive, that will refresh your spirit.

 
Next Lupus Live Chat March 21st!


Don't forget to tune in for the next Lupus Live Chat at the Lupus Foundation of America on Wednesday, March 21 at 3:00 p.m. Eastern Time, USA. This live online chat will offer recent research info on Kidney Involvement in Lupus. Renal or kidney problems are common in lupus and are among the leading causes of death. Please take your health seriously - even if this isn't an issue in your health, we never know what the future holds and the more we learn, the better we can plan for a healthier, happier, longer life.

 
Who is this Strange Dame?


Since my work is about lupus and not about me, that question has only been answered in relation to my life with lupus, in "Living Beyond Acceptance"
in our Lupus NewsLog Thrivers’ pages. Even getting that done took months of pleading, pressure and massive infusions of chocolate before it was published and still it was ordered back to the typewriter for more answers to more questions. I’ve had major surgery that was lots more fun.

Finally, in answer to the misplaced prayers of misguided friends, family, readers and my favorite publisher, I’ll be writing in a personal weblog - uh-oh, be careful what you pray for! Rose Harris, one of my favorite friends, kinfolk, writers and my co-columnist at the famed but now defunct Everyday Warriors has asked me to co-write her weblog, Strange Dame. Rose’s health makes it too hard for her to do alone anymore. I can’t refuse her anything and I’ve gotta admit the name is apt so I’ve already started.

Lupus NewsLog will continue, with my research and writing and Chris’s creation of more yummy, healthy recipes. This is such marvelous work; I meet the most heroic people, who don’t even know they’re exceptional - they’re just doing what they believe in, working in the way that fulfills them. Like Patricia Ionea, the creator of Lupus Romania who‘s also constructing the official Lupus Foundation of Romania. You’ll realize what an historical achievement and breakthrough this is once you read "Welcoming Lupus Romania”
and Patricia’s story, "Learn To Live Again" (Invata Sa Traiesti Din Nou)
in our Thrivers’ section.

It's no wonder why I love this work and I think my work at Strange Dame will swing in sync with my work at Lupus NewsLog, going full-circle and tying it all together with a zippy little bow. But whatever will I write about? Shall I discuss my tri-lingual cats, my Subaru-sized fish, my fascinating family and friends, my previously private sex life and unusual marriage proposals, my place in world events, my world travels and inter-planetary interactions or just stick to the truth? Which of these might be the truth and which might be delusions? What if all are both? Sufferin’ Succotash!

Whatever comes up at Strange Dame
it’ll be more sassy than somber because that matches Rose and me just fine. From our email conversations over the years and my lupie bio, some of you seem to have a pretty good idea of what I’m made of and what fuels my drive. Now, the word-portrait will be more dimensional. If you stop by and come up with comments or suggestions, drop me a line or two. Just don’t cuss me out or I’ll sic my cats on you and they‘ll lick, tickle and talk you to death in three languages.

 
Lupus Foundation of America - On Our Side


The next Live Lupus Chats at the Lupus Foundation of America (LFA) will be "Kidney Involement in Lupus" on Wed. March 21st and "Diet and Nutrition for People with Lupus" on Wed. April 11th.

There is also an ongoing interactive poll at LFA that helps you contribute to greater understanding of lupus by answering the questions of the week. Both chats and poll are linked on the LFA's home page so check in often to learn more about lupus and to help others' to do the same.

The LFA has so much to offer us. A non-profit organization, it uses contributions to support clinical research, help provide education and support for lupies like us, to raise public and governmental awareness and to work for legislation that will help define and strengthen our patient rights while speeding effective research.

Get to know the LFA - they're volunteers, working hard on our side and they can use our support as much as we need theirs.

 
LFA Responds to Dr. Phil's Comments about Lupus
March 6, 2007

The Lupus Foundation of America is concerned about and wants to correct misinformation given by "Dr. Phil" on his USA television show on March 5th. This is an important article so I hope you'll read it. Please remember, even well-known 'experts' aren't always expert in all their opinions. I remember this TV personality in his first Oprah appearances telling women they were "fat" and it was their "own fault". I saw some of those women break down and cry in humiliation - so far, humiliation and public shaming have not proven to be weight-loss solutions and it doesn't take a PhD to figure that out. Even then, clinical obesity research proved there are many factors affecting people's weight, most of them having little or nothing to do with "fault". Dr. Phil is a television personality not a medically specific lupus or obesity doctor and sometimes speaks outside his area of education and expertise. For factual obesity or lupus information - or any medical condition - please seek out the real experts and act in your own best interests.



©Shar Phoenix, Lupus NewsLog. Article reprints are available upon request. Contributing writers retain their own copyrights. All Lupus NewsLog sites and pages offer research based information to assist in understanding lupus and in self-advocacy. Content here, on sister sites or in email response is not a substitute for medical advice or treatment. Consult a qualified physician for medical attention.