Lupus NewsLog

"Med students are often told, 'Know lupus and you know medicine'. This is because SLE can affect every part of the body. The basic path of lupus, or the factors that cause the disease, get to the core of how the human immune system functions." Dr. Daniel J. Wallace, author, The Lupus Book.

Lupus NewsLog's Mission
As chronic disease rates rise, astute researchers and doctors view lupus as an autoimmune disease model. To them, we lupies are the canaries in the coalmines. At Lupus NewsLog, we're studying their research and educating ourselves. Our medications, our dietary choices, our supplements, daily stresses and challenges, our relationships with friends, family and the quality of our medical care can all influence our health, for good or ill. The better we know what works for or against us, the better we can protect ourselves. Together, we're learning how to out-fox the wolf.
Lupus NewsLog's Own Links
Lupus NewsLog
Our Home Base
Lupus NewsLog's Articles With Attitude
Study & Sass On LNL's Reading List
Lupus NewsLog Thrivers
Our Own Stories
Lupus NewsLog Wolf Bytes
Cookin' With Chris
Recipes/Food Tips
Lupus NewsLog
Links Library

Our Large LNL
Links Database
Lupus NewsLog's Articles
Our Right to Pain Relief
Don't Suffer In Silence
Pain Care Bill of Rights
Protect Yourself
Lupus and a Wolf-Wise Diet
Nutrition News
Breathe Easy for Better Health
Real Life Relaxation Tips
Boogie Your Woogie to the Beat of Life
Dig Life In Your Own Groove
The Fat Fights - Part 1 - The Straight Skinny
Lupus and
Big Fat Lies
The Fat Fights - Part 2 -The Wolf Weighs In
Feed Your Inner Wolf Well
Obesity & The
American Healthcare Shell Game

The Fat Follies

Email Shar Phoenix
Your Lupie Scribe
LNL Thrivers ~
Our Own Stories
"Learn To Live Again" (Invata Sa Traiesti Din Nou)
Finding Solace
in Sharing
Julie's Journey
Running With
The Wolf
A Survivor
Gives Her All
Taking a Bite
Out of the Wolf
Rewriting the Story of The
Big Bad Wolf
She is Still Here
Living Beyond Acceptance
Lupus NewsLog's Sister Sites
Lupus Romania
Patricia and Stefan's Superb, Resourceful Site
The Lupie Bin
and Lupie Bin's Forum
Julie's Friendly Home Site and Private Haven
Lupus Ohio
John's Home at
The Lupus Sundial
LWLupus Sherry's Friendship Garden
Shar Phoenix
At AuthorsDen

New Articles, More Topics, Short Stories And More
Strange Dame
Rose Harris and Shar Phoenix rideshare life’s journey minus Thelma’s and Louise’s Grand Canyon glide.
Lupus Links
Alliance for Lupus Research
Seeking A Cure
Arthritis Foundation
Supporting Over 100 Related Conditions
Do I Have Lupus?
¿Tengo Lupus?
Dr Andrew Weil
Lupus Archive
Faces of Lupus
Everyday People
FMS and related diseases.
Get Into The Loop with The Lupus Research Institute (LRI)
Lupus Library
Living With Lupus
Dedicated Support
Lupus Chronicle
Hope, Support
And Humor
Lupus Foundation of America (LFA)
Changing Our Lupie World
Donate to LFA
Educate And Help Find A Cure
Become a Lupus Advocate
Help Shape the Future
The Lupus Lady's Autoimmune Disease Support
"a place for solutions!"
Lupus Meetup
Meet other local lupies on the 3rd Tuesday monthly
Lupus Multiplex Registry and Repository
Help Track The Wolf
Lupus Site
Our Butterfly's First Home Site
Lupus Support and Survival
An Excellent Resource
L U P U S website
St. Thomas Trust Archive
Sister Syndromes
Thyroid Disorders And Treatments American Autoimmune Related Diseases Association
Arthritis Foundation
Take Control
American Fibromyalgia Syndrome Association
Arthritis Insight
"Knowledge is power...support is essential"
British Sjogren's Syndrome Association
Celiac Disease Foundation
Crohn's/C olitis

Defeat Diabetes Foundation
Early Detection
Diabetes Mine
One of the best and most info-rich "Big-D" sites
Fibromyalgia (and CFS) Basics
Hughes Syndrome Foundation (APS)
International Diabetes Federation
IBS Tales Irritable Bowel Syndrome: Shared IBS Stories
Lupus Nephritis
Kidney Disease
National Fibromyalgia Association
(AKA National Fibromyalgia Awareness Campaign)
National Graves' Disease Fnd.
(Thyroid Disease)
Pseudotumor cerebriarticles, abstracts & info.
Sjogren's Syndrome Foundation
Raynaud's Association
"Support, Advice and Resources"
Nutrition Links
Big Fat Blog
Truth, Lies
And Obesity
Gluten-Free Nutrition
Center for Food Safety
Watch What
You Eat
Food News.org
Pesticides In Produce Guide
Food Pyramids Nutrition Source
Harvard School of Public Health
Smart, Happy, Healthy Eating
Organic Consumers
Food Safety
Nutrition Analysis Tools and System
Purple Medical Blog
Health/Food News
Good Food Logs
Cheap Cooking
Frugal Food Tips
Food Network
Meals In Minutes
Fresh Vegetables
Lean and Green
Food, Beverage
Tang Monkey
FoodBloggers WebRing
Tasting Menu
Multi-Course Meals
Urban Organic
Shop Online
Support Coalition Troops/Familes
Fisher House
"comfort homes" - food/staples and healing care for injured soldiers and their families
Supporting US and Coalition Troops
Send Cards, Share Care Packages And Give More Help
Support Coalition Soldiers - Help Protect Iraqi and Afghani Children
Click to Donate
Your Free Clicks Will Help Others

Animal Rescue Site
Feed Pets & Help Animals Survive
Breast Cancer Site
Help Provide Mammograms
Chid Health Site
Medical Care For Children
Clear Landmines
Clear dangerous inhabited land and help save lives.
Help End Hunger
With Dannon & Second Harvest
Protect wildlife and wilderness
Feed Kids In Need
Literacy Site
Give Free Books To Children
Rainforest Site
Help Save Our Rainforests

Misused Medical Info Can Hurt
Please don't copy, edit or rewrite the information on this site to use without consent. LNL has received reprint consent from other sites. Facts used out of context, removed from their interacting links and material or copied inaccurately already have had negative impact on readers’ health. Please, for safety’s sake, save and share the links but leave this data where you find it or request consent and respect these simple guidelines.
Health Weblogs
A Chance to Cut is a Chance to Cure
a general surgeon
Adventures In Anesthesia
An interesting blog
Code Blog
Tales Of A Nurse
Nurses, Share
Your Stories
DB's Medical Rants
Health From Every Angle
Doc Notes
Family Medicine
Doc Shazam
A young resident's perspectives
Do No Harm
Stem Cells
Health Beat
Research Round-up
Health Care Blog
Insurance And Drug News
Interns' Diary
Two Healers With Heart
The Lingual Nerve
"The "Troupe Fantastique" - eight distinct voices from the medical field."
Medical Weblogs
News Feeds Directory
Hot Medical Commentary
Purple Medical Blog
News and Ideas
Q Fever!
Medical humor and medicinal parody
Random Acts Of Reality An E.M.T for the London Ambulance Service
Internal Medicine Library plus Q & A and Support Links
Science Blog
Clinical Topics
Trust Me, I'm a Doctor
An urban family doctor
AI & Lupus Logs
Bright Side of Life
Jillian's Weblog
Coping With Lupus
lupus and lupus-related illnesses
Death To Prednisone
Livejournal community
HGH Experiment Trying Human Growth Hormone to Combat FMS
IBS Tales Weblog Read personal stories and share your experiences.
Life Beyond Lupus
A Thoughtful, Articulate Lupie
Living with Diabetes
"How I attempt to live with diabetes"
The Lupus Lady
"shares her thoughts"
Thumper Thinks Out Loud: FMS One feisty writer, married to an anesthesiologist.
Wendy Usually Wanders
A Vermont
living lupie life
your winter=my austral summer
An intelligent, interesting read
Health News
Free weekly newsletters / new medical articles
American Medical News
The Physicians' Newspaper
BBC Health
Public Health
News Source
The British Medical Journal. News and customized email alerts in lupus research and more.
The Free Medical Journals Site
Free access to medical journals.
Golden Links 4 Doctors
The Best Medical Websites, voted by the Amedeo Community.
Health On the Net
(HON) News HealthDay Archive
JAMA Highlights
Current News And Article Archives
NYT Health
Registration Required
Reuters Health News
Breaking News
UPI (Medical)Investigations
Holistic Health
Alternative Medicine Homepage
Health Sciences Library System
American Association of Integrative Medicine (AAIM))
Integrative and Western Medicine
American Holistic Health Association
(AHHA)Partnering to Create Wellness
National Center for Complementary and Alternative Medicine
Center for Integrative Medicine (CFIM))
Univ. of Maryland School of Medicine
(CAM) Sites
Complementary and Alternative Medicine
Doctor Yourself
Dr. Andrew Saul
Integrative Medical Arts Group, Inc.
Holistic Online
Information Clearinghouse
Integrative Medicine Alliance
Bringing together healing traditions
Omega Institute for Holistic Studies
workshops and
retreats since '77
Whole HealthMD
Alternative, Complementary and Integrative Medicine
Mental Health
Borderline Personality Disorder Resource Center
How To Choose
A Competent

Psychology Today
Self Tests And
Find a Therapist
24 hours/7 days confidential emotional support
Health Watch
100 Top Hospitals
Protect Yourself
Use OTCs Wisely
COPD Center
Test Your Lung Function
The U.S. FDA
Recalls, Withdraws and Safety Alerts
Diabetes Monitor
Huge Resource
Drug Digest
Drugs, Herbs, Supplements Information Site
Health Care Quality Reports
Healthy Skepticism
Countering misleading drug promotion
InformedHealth Online
Research Facts "Informative, Objective and Evidence-Based"
Internet Medical Journal
Medical Info
Medicine Bridge
Free And Discounted Prescriptions
Health News, Drug Info
No Free Lunch
Drug Hustles And Hi-Jinks
Pharma Watch
Punctures drug promotion
Public Citizen
Examine Your Doctor
Randall Chronic Pain Scale
Helps Doctors Understand
Rx Assist
Free And/Or Cheaper Meds
Look Up Your Medications
Read Before Swallowing
Consumer WatchDogs
Pollution In People
Children's Health Environmental Coalition
For Kid's Sake
Congress Watch
Make Your
Vote Count
Consumer Lab
Tests Health Products
Health Care Without Harm
Trust for America's Health
Protecting The Public

Good Works
EarthDay Network
Help Preserve
The Planet
Green Ribbon Pledge
Conserve Energy
Habitat for Humanity International
Help Build Homes
Help Protect Iraqi Children's Future
Malaria No More
Malaria kills over 1,000,000 children every year. $10. bednets save lives
Medic Alert
Wear or Give Emergency Medical History Emblems
Mercy Corps
Help kids and others in need
Natural Resources Defense Council
Donate And Help Save The Planet
Network for Good
your town needs you right now
Operation Give
Supply Toys and Special Needs for Iraqi Children
Spirit of America
Help Americans serving in Iraq and Afghanistan aid people in need.
Lupus NewsLog's Code Warriors
LNL thanks Sheila Wilder for original weblog template design. Visit TV Is My Drug of Choice.
to read about this smart, salty, wry and witty blogger. Sheila's a keeper.

LNL thanks Jared Taber for expert weblog template modifications and site expansion. Custom computer systems and network solutions since 1997. Producing anime music videos for Outlawed Sleep Productions. Semi-finalist, comedy category, Anime Expo 2003. Email Jared Taber.
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Blogging Our Butterfly
Butterfly migration can be an arduous and chancy trek. For every winged wonder who seeks the sky and survives, countless others fall to earth before their time. Our butterfly was caught up in a internet monsoon but has lived to tell the tale and soar again.

Our stormy season began with our butterfly’s internet migration. Our newsletter was originally called Butterfly News and published by Joanne Forshaw of The Lupus Site, an outstanding, well known hub of lupus education and support. I was its researcher and writer from the second issue, for 2 years. Running both sites, a business and coping with her lupus kept Joanne much too busy so in May, 2003, she passed our butterfly on to me.

From the first click, our new site was hysterically hyperactive, with twitches, glitches and hissy fitches. I have no tricky techie web-wizard training atall, y’all. I'm just a hardworking healthcare writer and I’d been sending out this lupus news and support newsletter on a butterfly wing and a prayer. I was too busy rounding up research and translating it into ordinary english to focus on hocus-pocus.

Server support wasn’t supportive, so the joint was jumping, without a backup chute. The statistics were wildly inaccurate but I was distracted by more obvious errors. Trying with all my might, I still couldn’t overcome that site’s attachment addiction or its raging OCD.

It wouldn’t always send when I wanted but when it did, it just couldn’t stop. In true obsessive-compulsive tradition, it was never quite sure an issue had gone out so it resent each one, in both HTML and text, just in case. It still sends out the last issue on the first of every month, like a robot run amok. I can’t get in to repair it, dismantle it or strangle it – I’ve tried but I’m no internet ninja. It’ll keep it up until the end of the internet or of the world, whichever comes first.

All along, under cover of site darkness, old and new butterfly lovers were blowing in at galeforce, until our cocoon grew too big for its glitches and crashed under its own weight. During our two years at the first site, we’d grown gradually, from a handful of folks into 2500 members. In our new home, nearly 1300 more people joined in only seven weeks, with nary a hint from the site or its server. Leapin’ lupies, y’all – no wonder our cocoon exploded!

Caught in the eye of a rising storm and all at sea, we were mistaken for sharks and harpooned. Now, our lost site floats like a ghost ship, mired in the web’s own Sargasso Sea, luring innocent lupies into limbo. Our site server did not deign to answer my emails and it also torpedoed my email account so I couldn't alert my readers.

Fortunately, I’d bought a site at AuthorsDen.com as a backup and it’s come in mighty handy. There, you can find re-edited and currently updated versions of some of my moldy oldies, newer articles and a couple of short stories, with more to come. Unfortunately, that site can’t handle a mail list for a horde as huge as ours.

It seems we’re also too big a group for free or budget priced mail list servers. Most professional servers are geared towards marketers and charge accordingly. Alas, I’m not in this for the cash and I’m fresh out of rich, adoring relatives over 99 years old. The lottery has lost my number and the only fat cat in my life eats kibble on my dime.

With all this web witchery and while working to resurrect our website or reincarnate it elsewhere, I’ve been in a fiery flare, dealing with a family crisis and feuding with flu. I’ve been jumping through more hoops than a pink poodle in a six-ring flea circus and it’s made me mighty itchy. Time was a’wastin’, readers were wondering where their butterfly had flown and I couldn’t leave them without a safety net so I started blogging, with Lupus NewsLog.

Now, the butterfly has landed, with room to spare. Butterfly NewsBytes is now published at our sister site, Everyday Warriors, according to EW’s bimonthly publishing schedule. Our first BNB issue from EW, Lupus and a Wolf-Wise Diet was published January 1, 2004. That link and those that follow are offered here, at the top left under "Lupus NewsLog's Own Links".

Everyday Warriors is an exemplary healthcare resource, offering a wealth of information and warm support for a vast range of physical and mental challenges. There are many interesting contributors and columnists at EW, including doctors, nurses and folks a lot like me. You can read articles including Professor Stephen Hawking’s on life with ALS. It’s a great honor to be associated with such an extraordinary website.

Jillian Leslie is the publisher and webmaster of Everyday Warriors, an accomplished author and experienced editor. She’s also my very dear friend and our devoted ally. Jillian has complex health challenges to cope with yet she is a champion for all of us with our own. She’s written Attitude Boosters For Your Health with wisdom to help us live life gracefully and with gratitude. On this, as in so many things, she truly is an expert and an ideal role model. I love and admire her dearly.

Lupus NewsLog, Butterfly NewsBytes, Everyday Warriors and AuthorsDen do not require readers to subscribe, proving there really is a lupie heaven. They’re doing the write stuff together, with BNB at EW summarizing the research I unearth, LNL providing details, links plus a whole lot more and AD playing backup. Between them, we’ll keep Ol’ Wolfie dancing on his toes and teach this lupine canine a few new tricks.

©Shar Phoenix, Lupus NewsLog. Article reprints are available upon request. Contributing writers retain their own copyrights. All Lupus NewsLog sites and pages offer research based information to assist in understanding lupus and in self-advocacy. Content here, on sister sites or in email response is not a substitute for medical advice or treatment. Consult a qualified physician for medical attention.